The CNDR facilitates clinical trial feasibility studies, clinical trial notifications, clinical data analyses, and survey-based questionnaire studies. Please see examples of previous studies here

Researchers and companies wishing to conduct studies and/or patient notifications using data collected by the CNDR should complete the research proposal form and contact the CNDR National Office for more information.


Canadian Neuromuscular Disease Registry
Admin@CNDR.org, 1-877-401-4494