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The CNDR collects the following information on DM patients:
Diagnosis:
- clinical profile
- age at symptom onset
- family history
- genetic results
Clinical features:
- weight and height
- myotonia
- motor function
- ECG, Echocardiogram, and heart condition
- pulmonary function test
- dysphagia
- diabetes
- incontinence
- cognitive impairment
- fatigue/sleepiness
- cataracts
Interventions:
- myotonia medication
- motor assistance
- cardiac implant and cardiac medication
- airway interventions
- non-invasive and invasive ventilation
- diet modifications
- gastric/nasogastric tube
- diabetes medication
Social data:
- population group
- education
- occupation
- income
- home care
- transportation
- living status
For a detailed list of the data items collected, please see the CNDR_DM PDF.
cndr.org 